I read with interest the newspaper’s story about Elisha Morgan, the woman with Ehlers Danlos Syndrome who chose to have her foot amputated.

I fully support her decision; it’s her body and she can do as she wishes.

However, I don’t believe that the story accurately portrayed EDS. I say that because I have EDS.

EDS is a connective tissue disorder. It’s a genetic mutation that makes the skin stretchy and the joints unstable. Joints dislocate easily and muscles have to work extremely hard to keep the bones in place. It’s very painful.

A sneeze can dislocate a shoulder. Rolling over in bed can dislocate a rib or a hip. Repetition increases the pain so that walking hurts. Making dinner hurts. Folding laundry hurts. Sitting hurts. Because it’s genetic, a person who has it can’t exercise the disorder away. Pain control is extremely difficult.

What I most want readers to know is that amputating a body part will not fix EDS. That’s because it doesn’t affect just one joint. It affects the entire body. I feel for Elisha, but from what was described in the paper, it doesn’t sound like EDS. She deserves an accurate diagnosis. It could save her other foot.

Lisa Bondeson

Readfield

Augusta and Waterville news

Get news and events from your towns in your inbox every Friday.


  • This field is for validation purposes and should be left unchanged.